CDKL5 Australia
Who We Are
CDKL5 Australia is a community association run by Australian parents and carers of children with CDKL5 Deficiency Disorder. We are not a research foundation — we exist to connect families, provide information, and be a credible point of contact for clinicians and researchers in Australia.
Committee
Committee member details will be published here once our association is formally registered.
Scientific & Medical Advisory Committee (SMAC)
Our SMAC is being formed. Member details will appear here once confirmed.
Registration
CDKL5 Australia is an incorporated association. Registration details and ABN will be published here once issued.
Transparency
We are committed to transparency in how we operate. See our Engagement & Transparency page for our policies on industry engagement and conflicts of interest.