CDKL5 Australia

Community

You are part of a community of Australian families who understand what life with CDKL5 Deficiency Disorder looks like. Here is how to connect with us.

Facebook Group

Our private Facebook group is a space for Australian CDKL5 families to share experiences, ask questions, and support each other.

Newsletter

Stay up to date with news, events, and research updates relevant to Australian CDKL5 families.

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Parent Buddy Program

Newly diagnosed? We can connect you with an experienced Australian CDKL5 parent. No question is too small.